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Céline Dion to Present Final Performance in TV Special amid Her Stiff Person Syndrome Battle


Tue 28 May 2024 | 11:51 AM
Céline Dion
Céline Dion
Yara Sameh

Canadian music icon Céline Dion is planning to perform for one last time in a TV special.

The My Heart Will Go On songstress was diagnosed with Stiff Person Syndrome in 2022 but has been working on her voice as she seeks to sing once more amid her ongoing battle with the autoimmune neurological disorder.

Stiff-person syndrome (SPS), also known as stiff-man syndrome, is a rare neurological disorder that causes progressive muscle stiffness and spasms. The spasms can be painful and come and go and can worsen over time. The stiffness usually affects the torso muscles, but can also affect the arms and legs.

A source told The Sun: "Céline is not giving up her desire to sing again. She has been working with voice coaches, band members and specialists for over six months now. She believes she could release a concert film featuring her playing her biggest hits,".

Dion canceled the remaining dates on her Courage World Tour last year as a result of her health problems - which she shares how her illness has affected her life in the feature-length "I Am: Celine Dion" - and explains that she 'can't answer' if she will ever be able to get back on stage.

The "It's All Coming Back To Me Now" singer said: "I can't answer that… because for four years I've been saying to myself that I'm not going back, that I'm ready, that I'm not ready. As things stand, I can't stand here and say to you: 'Yes, in four months,"

"I don't know... my body will tell me. On the other hand, I don't just want to wait," she added.

Dion recently explained how she has different therapies to treat the condition, which impacts the muscles, daily but says she will never be 'cured'.

The acclaimed singer told France's Vogue magazine: "I'm well, but it's a lot of work. I'm taking it one day at a time. I haven't beat the disease, as it's still within me and always will be. I hope that we'll find a miracle, a way to cure it with scientific research, but for now I have to learn to live with it. So that's me, now with Stiff Person Syndrome."

In her nearly 40-year career, she has sold more than 200 million records. In 2009, she was named by The Los Angeles Times as the top-earning artist of the decade, with combined album sales and concert revenue exceeding $747 million.